When it is time to eat, Callie's tube hooks up to a bag of formula which is connected to a small pump that fits into a little backpack. Here is a picture of her all hooked up. Isn't she looking grown up?
This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.
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