Friday, July 22, 2011

Decided and Scheduled!

After a long week of mulling over whether to get Callie the g-tube PEG or button, and to Nissen or not, we have come to a decision!  We are sticking with just a PEG for now.  It feels so good to have this decided.  I did a great deal of research and was able to connect with quite a few moms online to get more opinions.  It was interesting to learn people seem to feel strongly one way or another about the Nissen.  Apparently it is a controversial procedure.  In the end I decided Callie's case does not seem severe enough to warrant the surgery at this time.  If she worsens it is possible to get it in the future.  By choosing just the PEG, we can minimize risks and avoid surgery for the time being.  But I will definitely be swapping it out for a button as soon as we are cleared to do so!  I do not look forward to how the PEG is going to stick out and get in the way.  I pray it does not bother her and she does not play with it.  Hopefully she learns to crawl on all fours soon because I do not think combat crawling is going to be comfortable with the PEG sticking out.  It will be interesting to see how this all works out.

As of today we have everything scheduled.  Callie will be admitted to the hospital on August 31st for the placement of the PEG as well as a follow up endoscopy to check for any inflammation of her esophagus from the food she has tried so far.  It will be a 2 - 3 day stay.  Two weeks following the procedure we will have an appointment with the EoE team to review her case and decide how to move forward with additional foods.  So far she has been cleared to try apples and then bananas.  Apples were a bust.  I think Callie must be the only person who does not like applesauce.  For two weeks she resisted eating pureed apples and apple juice.  We also gave her pieces of apple to put in her mouth, but she mostly just chucked them on the floor.  This week we introduced bananas and I am happy to say she has taken a liking to baby pureed bananas!  Today she finished one stage 2 container of Gerber bananas over 3 sittings.  That is her current record for quantity in a day (since we started solids again this month).  It is wonderful to see her willingly open her mouth and accept food.  There is much celebration at the end of her little meals and she seems happy that we are pleased.  

I feel very much at peace with our g-tube decision and am now counting down the weeks until we can get rid of her ng-tube!  


Rhine on July 24, 2011 at 10:01 PM said...

I don't like applesauce either!


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