Tuesday, May 14, 2013

Apraxia Awareness Day

Today is Apraxia Awareness Day!

Apraxia is among the most severe speech and communication problems in children.   Affected children have difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw, and palate that are necessary to produce clear, intelligible speech.  Callie's case is considered severe.  While some days this gets me down, lately I have been filled with hope about the future.  

I recently joined a Facebook Group for parents of children with apraxia which has over 10,000 members!  We are clearly not alone on this journey.  Other parents are regularly posting videos of their children showing their progress.  The video below caught my attention.  Addison is an adorable 4 1/2 year old girl (one year older than Callie).  She has severe apraxia (like Callie).  She has speech therapy 3 times a week at school and 2 times a week privately (like Callie).  She had zero words until she was almost four (like Callie so far).  After seeing a SLP who specializes in apraxia, she made phenomenal progress in just 9 months (we are on a waitlist for a SLP who specializes in apraxia!).    

am so happy for Addison's family and will continue to hold out hope for ours!



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