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6 years ago
Friday, September 28, 2012
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A mommy's journal about her very special baby girl
Caring for Callie
This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.
If you would like to read from the beginning, here is how it all went down.
Contact Lisa:
CallieMommy@gmail.com
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1 comments:
She does not look like a baby girl AT ALL:( She is just beautiful!!!
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