Overdue Callie Update

I'm sorry I have completely fallen off the blog wagon.  :(  Eventually I hope to start posting more.   Callie is 6 years old now and doing very well!  She is in gen ed kindergarten (!) with support and is holding her own.  It is starting to become more challenging for her to keep up as the curriculum picks up during...

Happy 4th of July!

We are still here!  Callie is doing amazing and there is so much to share. For now, I just wanted to share my super proud mama moment from today... Callie rode a bike in our July 4th parade!!  She has been working on pedaling for months and months (years?).  She just proved again that she will get there, in her own time....

Happy Easter

Happy Easter! ...

What a winter!

We have had quite a winter here in Northern Virginia!  By the standards of my friends farther north, it has been nothing, but VA is not very good at dealing with cold weather and snow removal.  We live in the more densely populated eastern part of our county and often get snow days due to the conditions of the roads in the more...

Callie at 4 (and a little)

It is so good to finally sit down and write an update about Callie!  I think about writing here just about every week, but can never seem to carve out the time.  My days are filled with work, appointments, taking care of the kiddos, keeping up with the calls & paperwork required for Callie’s care, and keeping the house together. ...

Happy Halloween!

Happy Halloween from Princess Callie! ...

Return of Seizures

This update is long overdue but I wanted to make sure to document this turn of events.  In May, we started noticing Callie's right arm twitching periodically.  It just seemed like an involuntary muscle spasm, but after it reoccurred several times over a three week period our fear of seizures quickly returned.  On two occasions...

Back to School!

Callie started her second year of special ed preschool at our home elementary school.  I really like the fact that she and Owen are in the same location and their classrooms are right down the hall from each other.  This year Callie is in an afternoon class five days a week.  A big yellow school bus picks her up and drops her...

AFOs and Walking

Callie continues to wear AFOs to help her walk properly.  We wear them as much as possible and always have them on when we leave the house.  The other day, however, we were at the airport about to board a flight, so I let her go without them for her comfort on the plane.  She happily walked through the airport independently...

Ask and you shall receive!

She asked for it, she got it!  :) ...