Callie continues to wear AFOs to help her walk properly. We wear them as much as possible and always have them on when we leave the house. The other day, however, we were at the airport about to board a flight, so I let her go without them for her comfort on the plane. She happily walked through the airport independently sans braces and I took a little video to document her form. She is doing great, but obviously will need her AFOs for quite some time. But that's okay... Even if this is as good as her form ever gets, I am thrilled. This is the girl who is not supposed to be walking!! :)
This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.
3 comments:
An answer to prayer!!!
Love,
Mom
She is precious!
She is amazing!
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