One of my special mom friends recently shared a link to a site about feeding tube awareness. I have been exploring this site and am finding it very helpful. There is also an associated Facebook group and I have enjoyed connecting with some other tubie moms. I even found some who have EoE kiddos and am looking forward to getting to know them and learning more about what Callie's future with EoE might be like so that I can better prepare.
Anyway, on the Feeding Tube Awareness website they have a page designed with information for family and friends. I found that I could really relate to some of their points and thought it would be helpful to share the page so that others might be able to have a better understanding of what it is like for many parents of tubie kids.
1 comments:
Wow! What a great site! Thank you so much for sharing it:)
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