Well, I wish I could report that it was smooth sailing after we returned home last Friday night, but it was anything but. Callie vomited at nearly every feed for the first 24 hours. I was in a state of panic, thinking with dread that we were headed back to the hospital. Instead, the GI doc on call gave me instructions for slowing down her pump rate and reducing her feed quantities. We were both very sick over the weekend and I think that is what contributed to her problems. By the end of the weekend luckily everything was more under control and I am happy to report things have gone a little better each day since.
Unfortunately she is now refusing all bottles and taking everything by tube, but I have been able to get her full daily goal amount of 900ccs/30ounces into her for the last five days. It took a few nights of slow 12 hour feeds, but we made it. And today I learned it is paying off... She had a weight check and is up to 17 pounds, 11 ounces!! This is a gain of just over a pound and a half! This is huge and I am thrilled!
We are going to stay with this EleCare-only diet for another 6 weeks or so until her esophagus heals and we complete her allergy testing. Hopefully we can then start adding solid foods back into her diet and again start working on her oral feeding skills. It is my understanding our goal for her weight is around 19 pounds. Our next weight check with her pediatrician is on May 12th.
4 comments:
I was so glad to hear that our little Callie is growing. All those tough days and nights are paying off!
Soon you'll have a nice chubby baby. She looks so happy in this photo, it's awesome. Go Mom and Go Callie.
Sounds like things are looking up, Lisa! You are doing an amazing job with her!! She's so beautiful :)
Lisa,
I know how joyous those numbers on the scale can be. I am thrilled for all of you. Go Callie...Go Mommie!
You are doing a fabulous job being her mommy, btw. I don't think we get told that often enough. :)
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