Tube Update

Thank you so much for all of your thoughts and prayers!  It was a long day, but we made it.  This morning we headed to Fairfax for an endoscopy.  They decided to take a look at her system before inserting the NG tube.  Unfortunately this meant putting her under.  It was very hard holding her little hand and watching her quickly slip into a deep sleep.  I cried and then went outside to wait.  The procedure ended up being pretty quick.  They looked around and took some images and biopsies.  I was a little surprised to learn they discovered something -- her esophagus is inflamed.  The GI doctor said he feels this is probably due to reflux or a food allergy.  They decided to put her on Prevacid and special EleCare formula to hopefully take care of either or both of these issues.  

After the endoscopy we checked into our room.  After getting settled and letting Callie rest for a little while a nurse inserted the NG tube.  I cried again.  I was an emotional mess today.  It was hard seeing her discomfort while it was inserted, although it only took a matter of seconds.  It was also just hard seeing her with a feeding tube.  :-(  This afternoon and evening she drank three bottles of her new formula, although gagged and vomited twice.  We are still waiting to see if she is having a hard time with the formula or just adjusting to the tube.  As I write this she is now attached to the pump for the first time receiving her first feed through the tube.  I have to say it is somewhat comforting to know she is receiving much needed calories and nutrition while peacefully sleeping.