We have had quite a winter here in Northern Virginia! By the standards of my friends farther north, it has been nothing, but VA is not very good at dealing with cold weather and snow removal. We live in the more densely populated eastern part of our county and often get snow days due to the conditions of the roads in the more...
It is so good to finally sit down and write an update about
Callie! I think about writing here just about every week, but
can never seem to carve out the time. My
days are filled with work, appointments, taking care of the kiddos, keeping up with the calls
& paperwork required for Callie’s care, and keeping the house
together. ...
This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.