Over two years ago I learned about the Christopher A. Walsh Laboratory in Boston. They research genetic mutations that can alter brain development and lead to malformations like polymicrogyria. By studying individuals affected with these conditions and identifying the associated genes and their mutations, they learn about the...
We are so ready for spring!! There were a few mild days last week and we loved getting outside for some fresh air. We look forward to many more warm days soon!
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This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.