Happy New Year!

Wow, what a year!  I am so relieved this one was better than the last.  2010 started as the best year ever after Callie's birth and ended as the worst year ever after her diagnosis.  2011 was much more positive and better all around.  We definitely had our ups & downs and tears of both joy & sorrow, but overall...

Merry Christmas!

Hope everyone had a very Merry Christmas!...

EoE, AFO, ENT Updates

The week is only half over, but it has been an eventful one.  There is always something going on with little Miss Callie! EoE ClinicWe went to Fairfax on Monday morning to meet with Callie's EoE team.  The meeting started by reviewing her last endoscopy and biopsy results.  Everything was clear.  This means apples, bananas,...

New EoE Opinion

Callie and I took a road trip to Baltimore yesterday afternoon.  We had an appointment to see THE allergy expert Dr. Robert Wood at Johns Hopkins.  I booked the appointment about 6 months ago for a second opinion of how her EoE is being treated.  We took Callie to Hopkins last year for a second opinion with a neurologist, but...

ENT, Sleep Center, and Progress

Last week was another busy one that included 8 appointments for Callie.  In addition to her therapies, she saw her ENT and went to a consultation at a sleep center.On Tuesday we saw Dr. Silva, her ENT.  We were following up to see if she still had fluid in her ears, which I knew she would since she has had congestion/cold/cough...

Therapy Pics

I finally found shoes to fit Callie's AFOs today!  We put the braces and shoes on her for the first time at PT this afternoon and it took two therapists to get them on.  Callie was such a trooper! They added ankle weights to her for part of the session.  She was still all smiles.   Here she is in OT recently: And...

AFOs & Button

We spent the good part of another day in Fairfax this past Friday.  Our first stop was Orthotic Solutions to pick up Callie's AFOs.  I was surprised that it took over an hour to tweak their fit.  The orthotist added straps and several pieces of foam to help them best fit Callie.  Unfortunately we haven't been able to try them yet because they won't fit into her shoes.  I spent...