We spent most of yesterday in Fairfax, a destination 35 minutes from home with no traffic and 1 hour+ from home during rush hour. I made the mistake of booking the first of three appointments there at 9:00 AM. I was sweating it all they way through the rush hour commute, but am relieved to report we made it exactly on time. Our...
During Callie's PT session at home yesterday and we were talking about how she keeps her legs stiff in extension. She is cruising nicely around furniture, but looks a bit like Frankenstein and does not bend well at the knees. We were trying to think of ways to break up her extension pattern and her therapist asked if I had a tricycle...
This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) & apraxia of speech, and has a G tube.