Crystal Ball

This week we had a follow up appointment with Dr. Im, Callie’s physiatrist or doctor of physical medicine.  At our last appointment we discussed ordering ankle & foot orthosis/braces (AFOs) to help her learn to walk correctly.  He said we would probably order them once she is pulling to a stand.  My main question for this...

G Tube Update

It is hard to believe Callie's procedure was almost two weeks ago already.  Things have been going very well!  The G tube is definitely better than the NG tube!  It is so nice to no longer struggle to keep the tape on her little face.  And I like how the tube is now out of sight.  Sometimes I forget about it.  We...

Going Home!

Yesterday went pretty smoothly, for a while.  Callie showed a little discomfort, but did well for the most part at 10:00 during her first formula feed through the new tube.  That was encouraging.  Then she did great at 2:00 during her second feed.  At that point I happily started packing.  A nurse came in to complete...

G Tube

Well, our little girl now has a G tube.  We checked into the hospital yesterday morning.  She was sedated while I held her in my arms.  It never gets easier... I teared up as she slipped away and then cried in the waiting room.  They performed an endoscopy to check the health of her esophagus and then placed a PEG tube....