Hospital Updates

SATURDAY: Unfortunately we are still in the hospital.  I received a little more information about her condition.  She has what is called eosinophilic esophagitis (EE) which is the specific diagnosis for her inflamed esophagus.  It takes up to two months to heal after you eliminate what is causing the inflammation,...

Tube Update

Thank you so much for all of your thoughts and prayers!  It was a long day, but we made it.  This morning we headed to Fairfax for an endoscopy.  They decided to take a look at her system before inserting the NG tube.  Unfortunately this meant putting her under.  It was very hard holding her little hand and watching...

Tube Time

So much has been happening.  I wish I had time to write more often.  A week and a half ago things got much worse with Callie's feeding.  She suddenly started resisting solid food (more so than usual).  Then for two days she was not able to drink milk from a bottle.  It was as if her mouth was not coordinated enough to latch onto her bottle.  I ended up feeding her milk by a medicine syringe.  Then...

Music To My Ears

CALLIE MADE HER FIRST CONSONANT SOUND THIS WEEK!  Very exciting!  :-...

Roller Coaster Week

This past week was filled with ups and downs.   UP: It started off with a great PT session.  I think it seemed great because Callie's last session of the previous week (OT) was a bust.  She was just uncomfortable (most likely reflux or constipation) and we really did not get much out of the session.  At this week's PT session, Callie was very happy and she did great.  She was rolling fluidly, sitting solidly,...